People we support told us

  • Recognising and respecting individual lived experience is paramount
  • Communication can invariably be improved
  • Involvement of carers and people's circles of support is key
  • We need better support in the community, regardless of diagnosis
  • Where we have to wait, support us to wait well
  • There are too many fractures and interfaces between services and organisations and too many hand-offs and lengthy referrals
  • We don't want to re-tell our whole story every time we see a different team
  • Navigating the system is very difficult
  • Neurodiversity issues are too often missed or misdiagnosed
  • There are too many gaps between services
  • We want to see a more holistic approach to mental and physical health