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Memory and Dementia studies

SHAPE Online Self-management and Health Promotion in early-stage dementia with E-learning for carers)

SHAPE is a randomised control trial of a new group-based online educational programme. SHAPE aims to improve the quality of life, well-being and health outcomes in people with dementia and their care partners. 

If allocated into the SHAPE intervention, participants will attend a virtual 2-hour group session, once a week over a 10-week period. A different theme will be covered each week. Themes included are: healthy habits, staying safe, planning for the future and managing memory difficulties. 

You can take part if you:

  • Are over 65
  • Have been diagnosed with mild to moderate dementia
  • Have good enough hearing and vision to interact in a group setting
  • Have a care partner (someone who knows you well) 

For further information please contact the SHAPE team at dpt.shape@nhs.net

PROTECT: A longitudinal study of cognition in people over 50 

PROTECT is an innovative cohort and infrastructure which is tailor-made to enable large-scale longitudinal data collection on ageing, deliver affordable clinical trials and to address the current barriers to prevention research. It is the only remote, purely online ageing cohort in existence. 

PROTECT participants’ complete in-depth annual validated cognitive and mental health assessments in addition to providing rich data on lifestyle, medical and demographic factors. The cognitive assessment batteries are unique, providing an unprecedented depth of insight into cognitive function through a fully remote and automated testing system. This dataset is supplemented by remote DNA sampling of all participants which are subjected to full genotyping, thus streamlining the process further and providing a fully genetically and cognitively characterised cohort. The PROTECT online format enables large-scale data collection and analysis at a fraction of the cost of traditional in-person cohort follow-up.

Sign up online: https://www.protectstudy.org.uk/

For more information contact the team at: dpt.researchadmin@nhs.net

Join Dementia Research (JDR)

A place to register your interest in dementia research. When you sign up to Join Dementia Research, the information you provide is used to match you to studies you may be able to take part in, both online, nationally and in your local area. The service connects registered volunteers with dementia researchers across the UK who are looking for people to join their studies.

You can sign up as a patient, on behalf of someone else or as a healthcare professional working in dementia healthcare. This resource makes a real difference to dementia research.

https://www.joindementiaresearch.nihr.ac.uk/

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